President

Secretary General

Treasurer

Advisory Board Members

       MaryLynneVanPoelgeest-Pomfret

Lynne van Poelgeest
World Federation of Incontinent Patients (WFIP)

John Photo EPPOSI

John Wubbe
­independent board member


Jos Photo EPPOSI

Jos Diaz van den Bogaard
­independent board member



Yunkap Kwankam

Johan Goris

Yves Verboven

Marcus Ott

­


Patients' Organisations

Moenier Oulad
European Digital Peer Patient Alliance (EuDiPPA)


Donna Walsh
Executive Director of the European Federation of Neurological Associations (EFNA)

Cor Oosterwijk
The European Genetic Alliances Network (EGAN)


Yann Le Cam
Chief Executive Officer of The European Organization for Rare Diseases (EURORDIS) (EGAN)

Paul Artel
Global Alliance of Mental Illness Advocacy Networks-Europe (GAMIAN Europe)

Donna Walsh
Executive Director of the European Federation of Neurological Associations (EFNA)

Lex van der Heijden
Rare Disease Patient Organization for Cutis Marmorata Telangiectatica Congenita-OVM (CMTC-OVM)

Academia and Sciences

Tischa van der Cammen 

TU Delft

Theo Groen

Athena Institute VU Amsterdam

Industry

Miriam Gargesi
EuropaBio

Peter Killcommons
Medweb Ltd.

Secretariat

Multiburo
38-40 Square de Meëus

1000 Brussels, BELGIUM